We had a huge amount of interest in our fringe event held on Tuesday at the Conservative Party Conference on privacy and electronic health records. We are vocal advocates of electronic health records (EHR) and the potential for technology to improve health. However we feel very strongly that it should be each of us who is in control of our personal information, and the public does not have a clue about NHS England’s “care.data” programme that is about to share our medical records with a wide range of organisations. We think this is a threat to trust, confidentiality and accuracy.
The care.data programme will share confidential information from our GP medical records with NHS commissioners, research organisations and private companies in de-identified AND identifiable forms. NHS England wrote to all GP practice in England recently informing them they must make patients aware of the move to share our records, and…
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