2020health calls for care.data to be postponed and replaced by an opt-in system

2020health's Blog

We had a huge amount of interest in our fringe event held on Tuesday at the Conservative Party Conference on privacy and electronic health records. We are vocal advocates of electronic health records (EHR) and the potential for technology to improve health. However we feel very strongly that it should be each of us who is in control of our personal information, and the public does not have a clue about NHS England’s “care.data” programme that is about to share our medical records with a wide range of organisations. We think this is a threat to trust, confidentiality and accuracy.

The care.data programme will share confidential information from our GP medical records with NHS commissioners, research organisations and private companies in de-identified AND identifiable forms. NHS England wrote to all GP practice in England recently informing them they must make patients aware of the move to share our records, and…

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About thepositivevoice

We originally set out to advocate and campaign for and on behalf of people living with HIV in Greater Manchester. But we chose to slightly change our name by adding beyond. Therefore our name is Greater Manchester & Beyond of People Living With HIV & AIDS. Cause there are many issues that affects people living with HIV we now look ate other health and social care issues that will affect people living with HIV in their everyday lives. For the purpose of this site we have chosen a strap-line name hence our user name here - this is of course "thepositivevoice". The reason for this is often the issues that affect us can be quite daunting and discriminatory to our very existence. So whatever negative we hear and see - we endeavour to turn that into a positive. There are many examples where a negative has turned into a positive and one of those example is the term "Queer" - well that is also quite interesting as some people in the lesbian and gay community don't like that very word - some have decided to own it. Therefore any person that calls another person (the example here) queer - some gay people will reply yes we are. As time moves on and I as the author of this blog - information will be never-ending. So watch this space.
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